The Heart of the Work

Momma of Two Neurodivergent Littles

Lorena Wade with her two daughtersLeadership for Access Equity logo — tree sheltering three children reaching toward stars.

This research began in the most beautiful, sacred and painful place of my life: motherhood.

Lauren, our IVF rainbow baby, came into the world as an answer to so many years of prayer. Then at just five weeks old, we almost lost her to a rare and life-threatening case of infant botulism. She became completely paralyzed, spent a month in the NICU, and began fighting battles no baby should ever have to fight.

Since then, Lauren has continued to show us what resilience looks like. Now three, she has a medically complex history, global developmental delays, and is on the autism spectrum. Her days are filled with special education preschool, physical therapy, occupational therapy, speech therapy, and ABA.

Chloe, our youngest, is 21 months old and has also recently been diagnosed on the autism spectrum after experiencing global developmental delays. She is now beginning her own early intervention journey through occupational therapy, physical therapy, and infant stimulation services.

My girls have taught me that access is not abstract. It is the waiting, the advocating, the therapy schedules, the unanswered questions, the hope, the exhaustion, and the quiet prayers that your child will be seen, supported, and given every chance to thrive.

A Personal Note of Gratitude

With profound gratitude to:

  • Angelina Gonzalez Landero, M.S., CCC-SLP
  • Everyone at ICEC
  • Dr. Heidi Herrera
  • Dr. Maya Vinod
  • Madison Walker

You have each been a lifeline to our family in ways words can only begin to hold. Your love, care, wisdom, advocacy, and steady presence have helped carry us through some of the most tender parts of this journey.

You are woven into the heart of this work.